Information About Specific Conditions

• Asperger's Syndrome
• Autism Society of America - Information to help understand autism, resources for families with  autistic children, and directory of local chapters nationwide.
• Autism Society Index
• cri du chat syndrome
• National Down Syndrome Congress - Home page for a national advocacy organization on Down Syndrome.
• The National Down Syndrome Society
• Down Syndrome Home Page - Home page for the Down syndrome listserve.
• Down Syndrome on the Internet - links to down syndrome web sites.
• 11q Research & Resource Group - Provides support and organizational efforts for parents of all children with 11th chromosome abnormalities.
• National Fragile X Foundation - A site with to information and resources about fragile X syndrome.
• FRAXA Research Foundation - national nonprofit organization providing information on Fragile X syndrome.
• The Hydrocephalus Association - Includes Hydrocephalus fact sheet.
• Renee's Communique's - Information on kids with special needs XXYY or Klinefelter Syndrome.
• Prader-Willi Syndrome Association (USA) - A national organization for families, professionals and service providers dedicated to improving the lives of people with Prader-Willi syndrome.
• The Comprehensive Williams Syndrome Home Page
• World Association of Persons with Disabilities - A website for persons with disabilities.
   

Support for Community Living

• The Center on Human Policy - A Syracuse University based policy, research and advocacy organization. Includes information about ordering Human Policy Press publications.
• The Institute for Community Inclusion - Advocates for the right of all people with disabilities to be full participants in their communities.
• Mental Retardation Services Division - What are Developmental Disabilities? Who is Eligible to Receive Services? MHMRA Available Services & Supports. Community Resources.
• National Home of Your Own Alliance - A Technical Assistance Center at the University of New Hampshire Institute on Disability.
• The Oaks Group - Organization of people who believe persons with developmental disabilities should be fully included in the mainstream of community life.
• Rehabilitation Research and Training Center on Aging with Developmental Disabilities
• The State of the States in Developmental Disabilities - Examines public spending for mental retardation/developmental disabilities services in the United States.
• Texas Council on Autism and Pervasive Developmental Disorders - The Texas Department of Aging and Disability Services provides administrative support for the Council.
   

Employment/Transition to Work

• Program on Employment and Disability - Resources and information on employment of people with disabilities.
• Employment Support Institute - Helping people make better decisions about employment options and policies.
• JAN - Job Accommodation Network, accommodations for workers with disabilities.
• Life Skills for Vocational Success - A resource of trainers to improve life skills
• The Transition Research Institute at the University of Illinois - Headquarters for the National Transition Alliance for Youth with Disabilities, promotes the inclusion of youth with disabilities in the national school-to-work efforts.
• Virginia Commonwealth University - Rehabilitation Research and Training Center on Workplace Support.
   

General Information for Families

• Beach Center on Families and Disability - Research on families, disability and policy.
• Do2Learn - Free Activities and Games - A website for those with special learning needs.
• Family Village - A Global Community of Disability-Related Resources.
• Mental Retardation Services Division - What are Developmental Disabilities? Who is Eligible to Receive Services? MHMRA Available Services & Supports. Community Resources.
• The National Parent Network on Disabilities - Dedicated to empowering parents.
• Special Child Magazine - free online publication for parents and caregivers of children with special needs.
• SSA Home Page - Information and publications on entitlement programs for people with disabilities.
   

Special Education

• Council for Exceptional Children - professional organization dedicated to improving education outcomes for students with disabilities.
• Council of Parent Attorneys and Advocates - Organization established to improve the quality and quantity of legal assistance for parents of children with disabilities.
• National Early Childhood Technical Assistance System (NEC*TAS) - A federally funded technical support program for early childhood education at the Frank Porter Graham Center at the University of North Carolina.
• National Information Ctr. for Children and Youth with Disabilities
• Special Ed. Resources on the Internet
   

Assistive Technology

• AbilityHub - Assistive Technology for computers and disability.
• Alliance for Technology Access
   

Health Promotion and Disability Prevention

• American Academy of Pediatrics - An organization of 50,000 pediatricians dedicated to the health, safety and well-being of infants, children and young adults.
• Alliance To End Childhood Lead Poisoning - A national non-profit organization dedicated exclusively to preventing childhood lead poisoning.
• Families USA - National nonprofit group which advocates for health and long-term care services.
• FAS Community Resource Center in Arizona
• The Fetal Alcohol Syndrome Prevention Office - Part of the Centers for Disease Control and Prevention's National Center on Birth Defects and Developmental Disabilities
• Healthfinder - A gateway consumer health information web site from the United States Government.
• World Health Organization's Helmet Initiative - Promoting use of bicycle and motorcycle helmets worldwide.
   

Disability Resources

• The Archives and Library on Disability at the University of Illinois at Chicago
• C L A S Culturally & Linguistically Appropriate Services -Early Chilhood Reserach Institue - Collection of Resources.
• disABILITY Resources on the Internet
• Internet Resources for Special Children (IRSC) - Web site with information relating to the needs of special children on a global basis.
• National Clearinghouse of Rehabilitation Training Materials
• National Rehabilitation Information Center - Funded by NIDRR (Nat. Institute on Disability Rehabilitation and Research) as a collection and information resource for NIDRR projects.
• PCMR- President's Committee on Mental Retardation
• Quality Mall - Person centered services supporting people with developmental disabilities - showcase of promising practices and innovations.
   

Accrediting Organizations

• The Council on Quality and Leadership- A resource for individuals, families, advocates, provider organizations, professionals and the public sector.
• CARF
   

National Organizations

• AAPD(American Association of People with Disabilities)
• The American Association on Mental Retardation - national organization for professionals and others interested in the field of mental retardation.
• American Association of University Affiliated Programs (AAUAP)
• ANCOR(American Network of Community Options and Resources)

• The Arc of the United States – Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities.

• The Bazelon Center for Mental Health Law, a national organization which focuses on legal advocacy for the civil rights and human dignity of people with mental illness.
• Best Buddies
• Consortium for Citizens with Disabilities - A coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
• Consortium of Developmental Disabilities Council
• Epilepsy Foundation of America - National organization that works for people affected by seizures through research, education, advocacy and service.
• Genetic Alliance - A national coalition of consumers, professionals and genetic support groups for concerns on genetic conditions
• Kiwanis International - An international service organization with numerous projects focusing on individuals with mental retardation and the worldwide prevention of iodine deficiency disorders, including mental retardation. See also
• Kiwanis Aktion Clubs.
• March of Dimes - Provides information, resources, referrals and data intended to assist the public in having healthy pregnancies and healthy births. The web site also provides information for health care professionals and offers opportunities for volunteering in March of Dimes fundraising events.
  
• National Association of Developmental Disabilities Councils dd
• National Organization on Disability - A national advocacy organization which promotes the full participation and contribution of America's 54 million people with disabilities, through Harris surveys and programs addressing community accessibility, emergency preparedness, employment, religious participation, and other aspects of life.
  
• National Organization for Rare Disorders - Technical assistance and information dissemination on rare disorders.
• Self Advocates Becoming Empowered
• United Cerebral Palsy
• TASH
   

Organizational and Grant Resources

• The Foundation Center - Tips for finding funding sources and writing proposals.
   

Disability Related Products & Services

• Allen, Shea & Associates - A technical assistance work group on community living for people with developmental disabilities. Includes various articles and publications including some excellent information on consumer-owned housing and supported living.
• You can also search for books on these disability topics at: 
• Danic Technology - Human services information services.

  
   

Other Important Sites

More sites that would be helpful to our users.

• Important sites

• Links of interest